CAVEAT:  you might have noticed that my title format has slightly changed.  i’m still starting it off with what ever comes to mind and after the colon i’ve appended what i think the post is about (you might interpret it differently or have an alternative understanding when you “read between the lines”).  it has been brought to my attention that some readers may not want to go through the entire thing for the title to make any sense.  this is not an egregious attempt to increase ‘likes’  or to act as ‘click-bait’ but shouldn’t it be part of ‘sharing’ to make stuff ‘more digest-able’ – looks like i still have a ways to go.

i underwent a medical procedure recently – recovery time is typically from one to two days –  because of my age it took me three days. so i temporarily stopped my daily exercise program for about two weeks – this affected me but i didn’t notice right away.  it became first obvious to me at a speech pathology session.  i used to get through them just fine even if they were during the afternoons – i didn’t feel winded afterwords but my sound production performance faltered occasionally.  Moreover when i went to my regular neurophysio appointment, she could physically feel the difference – i found out that apparently pain can also cause your muscles to “relax”.  At first i had done this to reduce my anxiety levels (but perhaps because i now take a natural supplement for it it’s less pronounced) but, also very importantly, getting my core strength up not only helps me avoid falls (and minimises potential injury) but also helps my speech.  Suffice it to say i’ve started up again and hoping to get back to the level i once was.

these aren’t directly related but are also from recent “trips” outside my house so…

i want to whinge about the three (let me be clear: not all or even a majority of them) taxi drivers driving skills were really bad:  the sudden stops-and- starts, not slowing down enough to take a round about, or abrupt jerking of the steering wheel.  These gave me a headache despite sitting in front and having the road visible – imagine how much worse i would have felt if i sat in the back.  i was going to complain about another thing but in hindsight one of my drivers was “self-obsessed’ that he would have acted that way to an “able-bodied” passenger.

Despite using my “letter board”, some drivers (not only taxi drivers but one support worker), still misunderstood me.  i suspect it’s either because they’re not patient enough to listen or having a preconceived notion of what i’m going to say (Ding!  Ding!  Ding!:  it’s usually wrong).  i understand that my speech can be hard to understand especially since this is probably the first time we’ve talked (on a few occasions i get the same drivers) but mistakes ca be avoided:  like going the wrong direction, it’s on the other side, that’s the wrong address, accidentally running me over,  etc.

we just want to feel listened to.  here’s a video by Purple Orange (it kind of reminds me of the You Can’t Ask That format on the ABC) about diverse communication shared on Darryl Selwood(Ph.D.)’s blog:  http://darrylsellwood.com/?p=998.  While i don’t  relate to everything said, i agree with the central premise of respect and the underlying theme of “not judging a book by its cover”.

it is very easy for me to accuse the drivers of not thinking: parking too close to the incline, the ramp, or curb so it’s “tricky” for me to get into or out of the car;  dropping me off by an entrance with only stairs ; driving “far” the door so need to cross the street, walk “some” distance, or negotiate a challenging surface (like inclines, uneven surfaces, pebbles, etc.); ask me directions or instruct them where to pass or stop; or turn the meter on while i’m still trying to get in the car (i believe the law states it should be only activated when i’m seated).  sometimes they can’t be bothered or are in a rush but sometimes i think it’s because they haven’t been exposed to or educated about disability – these are tasks they take for granted so there’s a need for more “training”.

FINAL WORD (let me know if these prompt helps with readability or i should go for more “traditional” headings – i know a poll is a more suitable for this but i probably won’t get enough respondents for a truly statistically valid result and, frankly, confronting my readership numbers scares me).  There’s a tension between keeping the post short-and-sweet and making it comprehensive enough to be informative – after all like they say, perfect is the enemy of good. Moreover timing is an issue, some thoughts have an ‘expiry date’ while others not so much.  While Twitter isn’t for me (trolls aside), it take me some time to type – this has the added bonus of letting me reflect and not simply reacting, All-in-all, i’m still struggling with the balance.  Furthermore, i feel the pressure to post frequently – as evidenced by the number of “self-corrections” right after i publish – when i should learn to recheck my drafts first.

 

system of a down

February 7, 2019

they showed The Godfather series on free-to-air TV (i rewatched the first two instalments but not the third which i don’t really like.  IMHO, the second film is one of those rare gems when the sequel is as good or better than the original).  I felt bad for the character Michael.  Like Abigail in the film The Favourite (side note: the Academy recognised the Aussie screenwriter), (in my experience) it usually doesn’t really matter if you start out as well-meaning but being part of a “corrupt” system changes you accordingly.

As Trevor Noah talks about apartheid, Hannah Gadsby about marginalisation, and Dave Chappelle about #MeToo, they all point out that these issues are systemic and deeply-ingrained.  Good individuals acting independently are insufficient to effect cultural change – it takes targeted actions (sometimes done in concert) for meaningful results.

i know New Amsterdam is just a tv show (mostly involving trite Hollywood pablum) but occasionally Dr. Goodwin showcases important lessons for us all: he may be over-idealistic at times but, essentially, the key is to understand the underlying structure that causes systemic issues.  It is difficult to improve systems but a good understanding is a vital start.

 

stranger in a strangeland (2)

November 17, 2018

i’m a sucker for good food.

and most of what I ate was tasty.  It reminds me of Melbourne (where I studied for a year) in that on almost all street corners you could get a decent cup of coffee (kudos to the Italians!), it was like that with food.  Not that the food wasn’t good in Melbourne (like New York, it clearly was influenced by the plethora of immigrants) but the food in Tokyo was something else (they have the most Michelin restaurants in a city in the entire planet after all).  If possible i prefer “cheap” grub (but like my sister says:  “Nothing is cheap in Japan) but i’m known for saving so i can spend for an “expensive” meal – i just value experiences over things.  To paraphrase Antony Bourdain:  good food is often simple food.

over there they seem to like their KitKat ™ (apparently this translates to the Japanese kitto katsu, meaning good luck or surely win   which explain its popularity) .  They’ve got the most assortment of favours i’ve ever seen:  strawberry, apple, Tokyo banana (a lot of their snacks have a combination of this fruit with chocolate), ube (purple yam quite popular in the Philippines) , wasabi (a type of Japanese horseradish), maccha (two variants of green tea – a “sweeter” one for the kiddies and a more intense one for adults),  miso (fermented soybean), sake(there were two variants of the rice wine alcohol:  Masuizumi or plum), and soy sauce.   Those were the ones we saw.  Apparently, there are also cherry; lemon; kiwi; mango; pineapple; maple; cappuccino; blueberry cheesecake; cookies plus; apple vinegar; azuki bean (more commonly known as the adzuki bean); apricot seed; baked potato; chocolate and  grilled potato; white peach; white and yellow peach; chocobanana; banana minis; bitter chocolate; i-stick (frozen dark chocolate);  pumpkin; baby pumpkin; sports drink; strawberry fromage (French for cheese); blueberry fromage, strawberry milk, French Bretagne milk; French salt; salt watermelon; fruit parfait; college tater (which i assume is a form of potato); double berry (a combination of blueberries and strawberries);  anko (red ben paste) and maccha; red bean paste; sweet bean paste; Yubari melon (a type of Japanese cantaloupe); Nasu Kogen (geographic highlands in Japan) milk; soybean powder; strong soybean flour; Houji tea (Houjicha is a roasted, Japanese green tea); jasmine tea; maccha milk; Muscat of Alexandria (a white wine grape variety); and brandy & orange variants. I’m guessing not all were ‘successful’ or that some flavours were only available for a limited time.  My philosophy has always been to try food – if you don’t like something then fair enough, at least you tried it (that’s why it took me awhile to taste rabbit because growing up I had them as pets – forget that they’re technically rodents).  I found the Tokyo banana and “dark” maccha okay but found the ube, wasabi, and “light” maccha too sweet (i suspect they were blended with white chocolate).  i missed out on trying the soy sauce and sake variants because of “quantity” issues.

we tried McDonald’s there:  not because we craved the familiar but because they are prone to localisation.  In the Philippines, they’ve got Fried Chicken (with rice if you want) and Spaghetti prompted (i guess) by the local competitor Jollibee (and as far as i know, the only place in the world where they are ranked second as far as hamburger chains go).  My wife & i had the Ebi (Japanese for shrimp) Fillet and my son had the Chicken Teriyaki burger. For dessert, we tried the Choco Pie (not the “white” one, the other one tasted like the hazelnut spread) and the Cinnamon Melts(it was good and “deconstructed” but i’m a sucker for a decent Cinnamon Roll)).

we ate at two places that our niece recommended: a sushi and a ramen place.  Both were “cramped” and my wife had to feed me (as I needed both hands to hold onto the tables there).  The sushi restaurant was like a sushi train in that there were no servers.  Instead, you ordered your item from a touch screen and it was delivered on one of three “tracks” (i think they must have corresponded to the price).  It was “good” and my son had seven plates.  i had more but “stopped” myself as i’m trained to eat a lot.  It was a “cheap” meal and you could tell as the rice easily separated from the fish (but i prefer sashimi from sushi anyway, although the hallmark of great sushi is supposedly the quality of the rice and not the seafood).  On the other hand. you had to pre-order your food from the ramen place using a vending machine.  you could even order the house ramen to take away – we didn’t as we didn’t want the hassle of dealing with fairly strict Australian Customs.  Both were off the beaten path and hidden away,  prospective patrons were unlikely to just wander off the streets of Shinjuku and the restaurants probably relied on word-of-mouth for custom.

i first had my taste of Uni (Japanese for sea urchin) at the “cheap”sushi place.  i also tried it at an “expensive” place.  Frankly, i’m obsessed with the uni  they serve in Japan.  It tastes different and MUCH better than the ones in the US, OZ or the Philippines (regardless of the price-point).  My working theory is:  since a lot more people order it in Japan so any stock doesn’t have to be stored for a long time so it is much fresher and, therefore, tastier.

i gained some weight because as my wife puts it:  what i had in a day, i’d usually consumed in a week.  She noticed more as she had to push me around.  It was not until i got back to OZ that the difference was obvious to me:  i became heavier there but at least the kilos seemed “distributed”, here i get a “ponch” on my tummy first.

aside from seeing the sights, we try to “eat like locals” when we can – i think it opens your mind further.  As Andrew Zimmern puts it:  “Food is a passport to adventure”.  And to paraphrase the late, great Anthony Bourdain: Travel changes you.

TBC

 

 

 

stranger in a strange land

November 9, 2018

we were recently in Japan for my wife’s conference.  she usually doesn’t bring me and my son but my in-laws were also overseas – while I can manage on my own (admittedly, with some difficulty), I can’t look after my son and all his needs.  It was a holiday tacked on to a business trip.  There’s a lot to unpack so where do I begin.

language problems were common so my wife had great difficulty arranging for an accessible room for me.  Once she said “accessible” and got “accessi” as a clarification. Another time, she mentioned with enough space to accommodate a “wheelchair” she was told that there was no “chair” in the room only a “sofa”.  Apparently, they refer to it as “barrier-free” over there but knowing that fact didn’t really help.  Thankfully, she had a relative there that could speak the language.  She facilitated the search but some things were still lost in translation.  We managed to get a room that fit all three of us (instead of the two rooms that seemed at one time, the only option for us).  However, they could only manage a short, plastic stool instead of a shower chair so my wife helped me to sit down so I could shower by myself (and not have to get her wet in the process). To some extent, this reminded me of a few of the challenges that we faced in US hotels.  One of the “accessible” rooms was on the ground floor but there were only stairs entering the hotel – luckily there was a rail i could use to go up and down.  Moreover, my wife had to help me shower.  There was another room were the bathroom was suitable but getting there on my own was problematic: a bed effectively blocked my path.  There too was no ramp at the hotel’s entrance but there were also steps and a rail for me to hold onto.

most of their street cuts were too “high” – so my son and I had to help my wife get me on the pavement as my combination, “lighter”. travel walker/wheelchair doesn’t allow for “self-propel”-tion. And, most lifts could only hold me and my family (did I mention I’m claustrophobic and try to avoid elevators if possible – I know, ironic for someone who has difficulty walking and can’t use escalators or travelators) as well as difficulty getting me out of typically-narrow hallways.  That said, we took trains most of the time (as taxis were really much more expensive but occasionally depending on the destination we didn’t have much choice ) because all platforms were (eventually) reachable via lift(s) (granted some were outside the station, some times you had to take more than one, some escalators could be made wheelchair-friendly with the assistance of staff (a first for me) and it’s not for people who are easily lost/poor at directions) and there were prominent “gaps” on to and off a few trains.  But this was better than our prior experience, as we learned first-hand, there were only a few elevators (only select stations had them and they weren’t always working) on the New York subway.

In 2020, Tokyo will host the Paralympics.  In my mind, that’s both good and necessary.  Usually, hotels have only one or two barrier-free rooms despite UN WHO stating that about 10% of the world’s population identifying as disabled.  Sure, not all of them require mobility or sensory aids but that’s still grossly disproportionate.   We missed the mad-rush for hotels in making rooms more accessible by a month.  Like America, the intention is there.  It only goes to show that it’s only not just an issue of wealth or access to technology but about education.  Originally I was upset  (admittedly, i still sometimes do in very extreme cases but you shouldn’t hold it against people for their ignorance but inform them of the proper “etiquette” (and the often unintended consequences of their actions).  Say what you will about Australia’s shortcomings when it comes to disability but i’m yet to find another country that does it better.

 

TBC

 

(bridge the ) Gap Year

October 22, 2018

i first heard the term ‘gap year’ when I migrated to Australia. It’s supposed to be a respite after Year 12 before college (or as they call it here: university).  A year of ‘rest’ from school is a luxury and culturally antithetical from an Asian, developing economy such as the Philippines.  I do believe that this is beneficial to one’s mindset but maybe this is a result of how formal education is currently structured – maybe having social justice integrated with the curricula is more effective.

Bridge The Gap is essentially a movement to help address the inequalities that exist in Australian society:  it seeks to make Aboriginal & Torres Strait Islander’s outcomes similar to that of the Caucasian population as the disparities are obvious.  Regardless of how you feel about the issue, a more general philosophy of empathy for societal challenges may shift our definitions for success and progress.  There is one I found with some aspects sort of the same but what I’m proposing is non-prescriptive and ‘decontesualised’ making it more applicable to most countries and subject to what’s realistic for the individual.

The idea still needs to be threshed out (and the subject of some blog posts) but I think it’s an idea worth exploring further.

born to run

November 24, 2017

PBS Newshour showed again Part 1 of Jeffrey Brown‘s interview with Bruce Springsteen (originally aired December 19, 2016; the video url: https://www.pbs.org/newshour/show/bruce-springsteen-tackles-truth-song-memoir ). It was meant to be a promo of his memoir but it was much more to me.

He might not be my favourite artist or a technical singer but like he says: he’s learned to ‘inhabit his songs’ which makes his songs more believable.  Moreover, his working-class roots makes him seem authentic and relatable. I don’t pretend to be an expert on him (or his numerous works) but it wasn’t until I heard the original acoustic (and much more slower) version of ‘Born in the USA’ that I thought I understood the lyrics and what that song was truly about.

As he says in his interview and his in his new memoir “I wasn’t modest in the assessment of my abilities. Of course, I thought I was a phony (sic). That is the way of the artist. But I also thought I was the realest thing you had ever seen.” It’s about dichotomy, I guess – existing on two different planes at the same time.  For me, a real artist lives (and exists) with contradictions – they are only human after all.

You can watch Part 2 at https://www.pbs.org/newshour/show/music-medicine-bruce-springsteen

heart and mind

October 24, 2017

saw an exhibit of an artist friend of mine who did a Ph.D.  My wife and I met her at the Adelaide Convention Centre – it’s been a couple of years since we last caught up but it feels like it was just yesterday that we met.

she said something of interest to me: the colour yellow sometimes indicates psychotic disturbance –   I had a feature wall at our home painted that hue.  I shared that when the lines on both palms (often referred to as the heart and head lines) align it is said that (I’m of course paraphrasing) that you’re either a genius or crazy – both of us share this rare trait while most of the populations’ lines do not meet.  It might be a case of self-aggrandisement but I subscribe to that belief.

That said, why can’t it be two sides of the same coin?  The traditional notion is either-or, binary thinking. Surely, the interstitial side (often with the grooves) is more interesting.

My upbringing and training often focused on the ‘how’ but psychology  and art has led me to believe the ‘why’ is just as important.