worse for wear

October 10, 2017

i won’t lie – I’m bit upset.  Just came from my NeuroPhysio and although my Scale for the Assessment and Rating of Ataxia (SARA) test wasn’t too bad it was the first time I can recall it getting worse. This coupled with my recent falls (of which I rarely did), the return of what seems like the “shaking” of my hands, and my recent battles with anxiety is genuinely concerning to me.

She agrees that it would have been much worse if not for my exercising daily (and I have to do “quite a few”). Improvements have always been unrealistic – our goal was always keeping it from getting worse.  Because the doctors still can’t identify it, there is no timeline I can refer to – it may go downhill rather quickly at any time like it did at the onset before it “stabilsed”.  She gave me additional exercises to see if these help.

I’m naturally pessimistic but stubborn.  It’s not my nature and was raised not to wallow but have learned that I can’t keep everything bottled in like I usually do.  I think I’ve got the right to feel overwhelmed sometimes.  I felt afraid so I cried.  It was cathartic and necessary for me to move on.

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last night I woke up from a dream and couldn’t breathe and get back to sleep – had to sit-up to facilitate the airflow.  I think I experienced what I can only describe it as my first “panic” attack – it felt similar to one of my claustrophobic bouts. Maybe I’m just “slow’ but after nearly a decade after my unnamed ABI, it was my first dream that I could remember where I was “disabled”.  Maybe it was acceptance or realisation. Or (seeing as it’s been really cold lately) I only do half of my daily exercises.  Or the news feature on assisted dying and how close Victoria is to passing draft legislation.  Regardless of what brought it about, my family is better off with my pension, so I better continue to suck it up. I’m really tired – I just need my “second wind”.