sign of the times

December 4, 2017

 

there’s a recent Vox video and reconsideration of shared spaces by urban planners:

https://www.vox.com/2017/11/24/16693628/shared-space-design

As a person who identifies as having a disability and someone who’s migrated from a developing country like the Philippines, I think it needs further work.  Don’t get me wrong:  thinking about it differently is a good start.  The traffic was so bad that my experience was (I can’t really speak for other people) it used tp take me an hour and a half to travel (and that was driving a car, what more if it was public transport) 12 kilometres during rush hour – and it’s supposedly worse now. Granted, it may have been a function of where I previously lived but my quality of life was rather compromised.

I mostly used the Bicutan exit of the South Super Highway – it’s like two intersections are overlain (but not quite) and depending on where you’re coming from you’ve got four to six options.  I used to joke that traffic enforcers were there to enforce traffic.  When we’re there, my son asks (if presented with the choice) where we’re going before he consents to leave – implicitly weighing the pros and cons of the endeavour.  He mentioned once that as a school project he might consider the quandary – I wish him the best of luck.

I think this needs to be thought about (and thought about again numerous times until a workable alternative is found).  This may not be easy and the state of play may not currently be suitable but I laud the efforts nonetheless. Sure there might be a lot of failed attempts but an iterative approach may be required in developing a suitable design.  This is where computer simulation can be useful in testing rather than immediately risking human health and well-being.

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sing

November 6, 2017

 

last week a choir performed this song.  I haven’t heard it in awhile being in OZ but it’s one of my favourite hymns. It made sense that they sung the English version so that most people could understand.

Strangely, the original is by St. Ignatius of Loyola and for some reason my personality clashes with the Jesuits.  The point is (regardless of spirituality), we should always aspire to be more selfless.  I don’t claim to be so inclined but the reminder to be generous is always welcome.

The English lyrics can be found below but I find the Tagalog version more beautiful and expressive.  There are many versions (most of which you can find on YouTube)  but I still prefer the one by the Bukas-Loob Ministry.

To paraphrase St. Augustine:  “Those who sing pray twice.”  A certain person inadvertently was mistaken  when he claimed to originate the saying (having received an Augustinian education I’m reasonably certain).  I’ve grown to be an admirer, who doesn’t like a good redemption story (I think that requires a seperate blog entry).

I may no longer have the ability to do it outwardly but in my mind, I still sing.

PRAYER FOR GENEROSITY (with English lyrics)

Dearest Lord, teach me to be generous
Teach me to serve You as I should
To give and not to count the cost
To fight and not to heed the wounds
To toil and not to seek for rest
To labor and ask not for reward
Save that of knowing that I do Your most holy will

 

PANALANGIN SA PAGIGING (PRAYER FOR GENEROSITY in Tagalog)

Panginoon, turuan Mo akong maging bukas palad
Turuan Mo akong maglingkod sa Iyo
Na magbigay ng ayon sa nararapat
Na walang hinihintay mula sa Iyo

Na makibakang ‘di inaalintana
Mga hirap na dinaranas
Sa tuwina’y magsumikap na hindi humahanap
Ng kapalit na kaginhawahan
Na ‘di naghihintay kundi ang aking mabatid
Na ang loob Mo’y siyang sinusundan

Panginoon, turuan Mo akong maging bukas palad
Turuan Mo akong maglingkod sa Iyo
Na magbigay ng ayon sa nararapat
Na walang hinihintay mula sa Iyo

closing time

October 18, 2017

technically the Repatriation Hospital didn’t close down today but it was my last day at the free student physical therapy clinic.  I wasn’t really that sentimental before but I’m feeling a bit sad.  Maybe since I spent several years there and was so used to the caring people there or maybe because I’ve been more in tune with my emotions since nearly a decade of  living with an ABI.  Regardless, it was probably a combination of these factors.

More than my very slow improvements, I’m more of a homebody but it was a weekly “excuse” to get out of the house.  I’m not very big on socialisation but it felt good to be around other people who truly understood the challenges of daily life and the “simple” acts most people don’t give much thought to but are difficult for us.  It was never about commiseration but having a shared experience.

Many thanks to Dino for the rides; to Sandy and the other girls at Reception; the Physios in charge and the students assigned to me (hopefully you learned a lot from me as I did from you).

Rehabilitation is so much more than “mending” the body.

worse for wear

October 10, 2017

i won’t lie – I’m bit upset.  Just came from my NeuroPhysio and although my Scale for the Assessment and Rating of Ataxia (SARA) test wasn’t too bad it was the first time I can recall it getting worse. This coupled with my recent falls (of which I rarely did), the return of what seems like the “shaking” of my hands, and my recent battles with anxiety is genuinely concerning to me.

She agrees that it would have been much worse if not for my exercising daily (and I have to do “quite a few”). Improvements have always been unrealistic – our goal was always keeping it from getting worse.  Because the doctors still can’t identify it, there is no timeline I can refer to – it may go downhill rather quickly at any time like it did at the onset before it “stabilsed”.  She gave me additional exercises to see if these help.

I’m naturally pessimistic but stubborn.  It’s not my nature and was raised not to wallow but have learned that I can’t keep everything bottled in like I usually do.  I think I’ve got the right to feel overwhelmed sometimes.  I felt afraid so I cried.  It was cathartic and necessary for me to move on.

fully sic(k)

August 14, 2017

i enjoyed the film “The Big Sick” but wasn’t really surprised that the cinema was practically empty.  I’m no marketing guru but I think the title (although understandable) could have used some tweaking. Despite receiving a rating of 98% in Rotten Tomatoes and grossing a lot in the US, the film didn’t seem to do well in OZ.  Some might find “sick” in the title; or the plot revolving around a coma; or it being primarily set in a hospital to be off-putting to some movie patrons.  My dark humour aside, my wife & I have firsthand experience with illness so we never really felt confronted.

In a way, this kind of reminded me of the movie The Shawshank Redemption (based on the novella Rita Hayworth and  The Shawshank Redemption by Stephen King in the book Different Seasons. Three of the four stories – corresponding to a particular season.  Of note is the tale of The Body or what most know as Stand By Me but that’s another story).  A lot of people have watched the film but it didn’t fare well in the cinema.  That’s because most movies rely on word of mouth but the title was too hard to recall for most viewers (sad to say that this may have been an instance where a focus group may have been helpful).

The movie may not have been advertised enough; or most Aussies may not be familiar with the work of Kumail Nanjani because the television show Silicon Valley isn’t really big here.   Regardless, go out and watch The Big Sick.

Sorry (errata)

July 24, 2017

i meant “anyone” not “anymore”.  I can no longer see the words clearly on the predictive text when I post using my phone after my ABI and it’s difficult for me to do a pinch and zoom since my co-ordination is compromised.

last night I woke up from a dream and couldn’t breathe and get back to sleep – had to sit-up to facilitate the airflow.  I think I experienced what I can only describe it as my first “panic” attack – it felt similar to one of my claustrophobic bouts. Maybe I’m just “slow’ but after nearly a decade after my unnamed ABI, it was my first dream that I could remember where I was “disabled”.  Maybe it was acceptance or realisation. Or (seeing as it’s been really cold lately) I only do half of my daily exercises.  Or the news feature on assisted dying and how close Victoria is to passing draft legislation.  Regardless of what brought it about, my family is better off with my pension, so I better continue to suck it up. I’m really tired – I just need my “second wind”.