fully sic(k)

August 14, 2017

i enjoyed the film “The Big Sick” but wasn’t really surprised that the cinema was practically empty.  I’m no marketing guru but I think the title (although understandable) could have used some tweaking. Despite receiving a rating of 98% in Rotten Tomatoes and grossing a lot in the US, the film didn’t seem to do well in OZ.  Some might find “sick” in the title; or the plot revolving around a coma; or it being primarily set in a hospital to be off-putting to some movie patrons.  My dark humour aside, my wife & I have firsthand experience with illness so we never really felt confronted.

In a way, this kind of reminded me of the movie The Shawshank Redemption (based on the novella Rita Hayworth and  The Shawshank Redemption by Stephen King in the book Different Seasons. Three of the four stories – corresponding to a particular season.  Of note is the tale of The Body or what most know as Stand By Me but that’s another story).  A lot of people have watched the film but it didn’t fare well in the cinema.  That’s because most movies rely on word of mouth but the title was too hard to recall for most viewers (sad to say that this may have been an instance where a focus group may have been helpful).

The movie may not have been advertised enough; or most Aussies may not be familiar with the work of Kumail Nanjani because the television show Silicon Valley isn’t really big here.   Regardless, go out and watch The Big Sick.

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Sorry (errata)

July 24, 2017

i meant “anyone” not “anymore”.  I can no longer see the words clearly on the predictive text when I post using my phone after my ABI and it’s difficult for me to do a pinch and zoom since my co-ordination is compromised.

last night I woke up from a dream and couldn’t breathe and get back to sleep – had to sit-up to facilitate the airflow.  I think I experienced what I can only describe it as my first “panic” attack – it felt similar to one of my claustrophobic bouts. Maybe I’m just “slow’ but after nearly a decade after my unnamed ABI, it was my first dream that I could remember where I was “disabled”.  Maybe it was acceptance or realisation. Or (seeing as it’s been really cold lately) I only do half of my daily exercises.  Or the news feature on assisted dying and how close Victoria is to passing draft legislation.  Regardless of what brought it about, my family is better off with my pension, so I better continue to suck it up. I’m really tired – I just need my “second wind”.

running in place (2)

June 29, 2017

another reason I exercise daily is so that I can propel myself further when the wheelchair is equiped with rim grips and so I can open ‘heavy’ doors (especially for the toilet) independently.  I usually have a light lunch to help keep my weight in check(because I indulge occasionally in tasty food) so I can ‘easily’ push myself with a walker, to help reduce the injury when I sometimes fall, and make it ‘easier’ for the person pushing (or infrequently lifting) me on a wheelchair (if I can’t roll myself).

running in place

June 28, 2017

sometimes treading water is the ‘best’ option albeit somewhat frustrating (we can’t always be running towards or running away from something as comedian Wil Anderson deftly puts it).  Next week, I resume seeing Physio students weekly.  I do this and see a NeuroPhysicalTherapist about once a month to help prevent further decline.  Moreover, I exercise daily (except when I’m not well) to maintain my health and to increase my endorphins as I now have to stay home (whereas I used to hold at least two jobs before my ABI).  I’m now working on a doctorate to help pass the time and keep my mind occupied.  Furthermore, I take certain supplements to help boost my health as no medication can be prescribed to me.

Sure there are days (more infrequent now after all these years) when I don’t feel like doing much but force of habit can be of great benefit at these times.  I don’t want to wallow in self-pity or play the disability card but the sad reality is most of society (even in this day and age) only understands when these are emphasised.  On one hand, we need to show empowerment and focus on what we can do; on the other, we need to show vulnerability (this is especially hard for me given my nature and the manner in which I was raised).   Good thing my wife and son are generally ‘happy’ and complement me and act as a foil to my inherent negativity.  In short, achieving balance is tricky and I don’t pretend to always get it right but I try my darnedest (as by default I have always done this).

Aligning what was expected of me and my current situation is a real challenge. I’m on the road to acceptance but still have a ways to go.

yin-yang

May 18, 2017

we ate out last Saturday night.  On one hand the food we ordered was really tasty, on the other it was a real “pain” going to the accessible toilet (you had to go out of the restaurant and traverse a side street with inclines and “extreme” dips).  To be fair to them (as they were sincerely apologetic) , you can privately contact me for the name of the eatery.  I guess it depends what your criteria for rating is – most architecture isn’t very inclusive,

radio silence

April 3, 2017

i may not post much on this blog for the foreseeable future because one of my Ph.D. supervisors asked me to set-up another private one that’s sort of a diary holding various design considerations  for my app and such. Lately, I’ve been more “active” on the other one as it’s beginning to wind down and it takes a lot of effort for me to type at least two posts.