mind over matter
October 20, 2015
It takes about ten times as much effort for someone who has Cerebral Palsy to do things according to RJ Mitte. In my case, it’s possibly half that – say five (using my best guesstimate). The medicos aren’t quite sure what I have – heaven knows they’ve run a plethora of tests which all came back negative. Thankfully, it seems not to be genetic as I’ve got a son. They often refer to it based on my symptoms – as I have quite pronounced co-ordination and balance issues. I suppose not having a name for it is beneficial in the sense that there’s no label to categorise me under and just deal with me in a fixed way. Sure, not knowing was difficult at first as I wanted to perform the recommended steps and seek out the most appropriate forms of treatment (from the start, I haven’t been prescribed any medication for it) but in a roundabout way it lead to more direct acceptance – it emphasised that control is, ultimately, an illusion.
When I perform certain actions, I don’t expect awe but simple acknowledgement – sure I was brought up not to notice certain compliments but the fact remains that people don’t say it nearly enough. Honestly, I often get frustrated when people don’t give certain things much thought and just assume most tasks are “easy.” I can do some things because I try hard and exert a lot of effort – not to blow my own horn, but some people can’t do what I can do. It may seem counter intuitive but I have to concentrate when the physios ask me to relax or “go floppy.” The reality is that there are now actions I find challenging – sorry to disappoint but I now need help with certain things as I can no longer perform them on my own – I do what I can but some things take a lot of time and effort if no assistance is offered. Sure, there are things I can do on my own but things would go a lot faster or smoother if done for me instead. It sometimes doesn’t matter if people are exposed or what you say – some of them simply generalise to others their own experiences. People can fall into the trap of wrongly assuming that what’s “easy” for them is “easy” for everyone else. I find what they say about assumptions, not necessarily “truer” but more poignant now.